Add confidentiality in Data Tidiness
Czirion opened this issue · 1 comments
Reviewer's comment: In the Data Tidiness section could be worth briefly mentioning confidentiality issues that may arise from storing and sharing the metadata, i.e. in the case of human samples or patents.
To do: Add a paragraph or box about confidentiality in the Data Tidiness episode.
We added the discussion box "Ethical considerations in microbiome studies," where we addressed confidentiality, prior informed consent, policies about result communications, and in general, how to apply the ethical principles: do good, don't harm, respect, and act justly to microbiome studies.
We consulted the following references: Mc Guire et al 2008 Ethical, legal, and social considerations in conducting the Human Microbiome Project and Lange et al. 2022 Microbiome ethics, guiding principles for microbiome research, use and knowledge management