lisushka/privacy-tax

References and further reading for The Privacy Tax.

The Privacy Tax: How tracking and hacking affect disabled people, and what we can do about it

Presentations

• Phoenix Linux User Group, 2021-03-11 (no known recording)
• linux.conf.au 2021, 2021-01-24 (open captions, transcript, CC BY-NC-SA 4.0)

References

Talks

• Ben Mustill-Rose: When big tech tries to make assistive technologies: were we better off without them?
• Karen Sandler: Six Years Later, or Hey, did you ever get the source code to that thing in your heart?
• Lana Brindley: Facebook, Dynamite, Uber, Bombs, and You
• Effy Elden: False Assumptions Developers Make About Gender (and their sometimes hilarious results)

Open-Source Adaptive Technology

• NVDA Screen Reader (source code)
• OpenAPS (source code)
• OpenAAC (list of projects)
• The Open Wheelchair Foundation (plans)
• Made For My Wheelchair [de+en] (Open Lights plans) (Open Trailer plans)
• Open-Source Ventilator Information (list)

News and Current Affairs

• Woman with disability wins NDIS funding for sex therapist in 'precedent-setting' case, Norman Hermant and Emily Clark, ABC Online, 2019-07-11
• Amazon’s Face Recognition Falsely Matched 28 Members of Congress With Mugshots, Jacob Snow, American Civil Liberties Union, 2018-07-26
• More Than 45 Million Medical Images Openly Accessible Online, CybelAngel, 2020-12-14
• People Are Clamoring to Buy Old Insulin Pumps, Sarah Zhang, The Atlantic, 2019-04-30
• You Snooze, You Lose: Insurers Make The Old Adage Literally True, Marshall Allen, ProPublica, 2018-11-21
• 'Like Being Grilled Alive': The Fear of Living With a Hackable Heart, Jameson Rich, OneZero, 2020-11-18

De-Anonymised Data Sets

• 'Shocking' myki privacy breach for millions of users in data release, Mary Gearin, ABC Online, 2019-08-15
• Health Data in an Open World, Chris Culnane, Benjamin I. P. Rubinstein, and Vanessa Teague, arXiv:1712.05627
• On Taxis And Rainbows, Vijay Pandurangan, 2014-06-22

The Australian Government and Private Data

My Health Record

• About My Health Record
• The Australian Privacy Foundation's statement on My Health Record
• Stronger My Health Record privacy laws
• Cancelling a My Health Record, including current data retention policies

Cautionary Tales

• Autism and the web: using web-searching tasks to detect autism and improve web accessibility, Victoria Yaneva, ACM SIGACCESS Accessibility and Computing, August 2018

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